johno_1960: (Default)
[personal profile] johno_1960
And I don’t want to do anything. Everything sounds stupid. My counselor says the weather is unsettled, and that affects those of us with auto immune diseases. I stopped drinking coffee, and while it was kind of by accident, I have been losing my taste for it. I have consumed a lot of coffee in my life, but I think it’s kind of an indication of the change in my life. I feel kind of empty. I don’t want to make anything happen. I sleep and read. My wife is getting tired of it. She is in the midst of a week of nights. That is always a test.
It’s hard to master your mind when your head really hurts.

sympathy

Date: 11 Sep 2025 08:19 (UTC)
kallianeira: (jade things)
From: [personal profile] kallianeira

No, I don't have advice and hate getting it, especially from professionals who have really no idea how hard it can be and can't see why you don't just get on with it and dig yourself out. I was telling a nurse the other day that I only ever get max 4 of 6 packets of a prescription med I'm on - I don't get to the pharmacy regularly enough and the script expires. Every time for years. "Can't you set a reminder to go and get it?" was the utterly meaningless response. Because I can't get there even though it is in my diary. Don't you understand that kind of difficulty is what this condition entails? I almost bit of her head.

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John O'Neil

December 2025

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